My Story

Sarah McEvoy Photography

It was in the Autumn of 2012 that my health began to rapidly dwindle. My energy was long lost, no strength remained within arm's reach, and everything including my arms began to ache. I became bedridden and isolated in my own whirlwind of illness and consequent depression. 
Two Autumns have passed and I am progressively gaining strength, after gaining much experience and knowledge of illness, health, and various factors that keep the two notions separate. Join me on my journey as I endeavour to learn more about what makes for a healthy individual, as I put this chronic fatigue to rest.

History

At the age of nine I had glandular fever for about two months. 
I had a persistent sore throat, cough and throat clearing thing going on throughout childhood. It drove my mother crazy. The GP diagnosed it as asthma and prescribed inhalers. At the age of ten I was told by a naturopath that this was due to a dairy, wheat, rye and barley intolerance. My diet changed dramatically. My ten year old self hated that naturopath! No longer was the table laden with raspberry buns, Madeira cake and chocolate milk aplenty. Instead I carried around almonds and raisins everywhere I went and reluctantly made the switch to soy milk and corn thins. But I did get down to a healthier weight and with the diet and truckload of supplements, my health strengthened somewhat.

Energy levels

I was often tired. I don't remember so much before the glandular fever, but definitely recall low energy levels after it. I would go through phases of excessive tiredness and then seem to recover for a time. I would try everything, from sleep inducing foods, herbal sleeping pills and lavender baths and earlier bedtimes, to protein shakes, spirulina and the coffee addiction that began at fourteen. I started to 'recover' less as the years went on, often missing a lot of university from age twenty to twenty three because of sheer exhaustion. I could not keep my eyes open. I had to study part time because I had such a seemingly weak constitution, I was always just hanging on. But doctors had always put tiredness down to lack of exercise (which would definitely have been a factor) or the ho-hum response, "well your blood tests have come back normal, so just see how you go, and maybe come back in a few months if it's still the same."

Stress 

I was going through a particularly stressful period and was then in a car accident. This lead to further stress with insurance companies, disputes tribunals and car purchasing. I began to enter one of those 'phases' of exhaustive fatigue again, but this time I couldn't kick it.


Symptoms

The fatigue became much worse, to the point where not only did I have to leave university and barely leave the the house, but I couldn't pour the jug without using two hands or go to get the phone without becoming breathless. I also experienced the following symptoms:

  • sore glands
  • dizziness
  • nausea
  • loss of appetite
  • joint pain
  • muscular pain
  • headaches
  • brain fog 
  • chest pain 
  • shaky hands
  • red eyes
  • thinning hair
  • weight loss
  • dependence on coffee and energy drinks to get anything done

Progress

After suffering with the symptoms and the consequent depression and significant life changes, I started learning. It took a while to get a diagnosis, I had to go to multiple doctors, and finally travel to see one who specialised in CFS. Though relieved and grateful to finally receive diagnosis, there was no cure. After trying bed rest (I didn't have any choice) and weekly vitamin b injections, I saw no progress and was struggling to get through each day. I started to read whenever I felt strong enough, trying to gain any knowledge that may help. The next year I discovered the role that diet could play in CFS and autoimmune illness, as well as how possible underlying factors of the illness could be addressed. I started to regain strength slowly, only to lose it again, to gain it....and so on. 

My goal now is not just to recover, but to try and be of help and encouragement to anyone else who finds themselves weak, sick and clueless as to why, and what to do next. 
Join me as I continue to learn about immune health, fighting illness and gaining strength!

Love,
Scarlett 
xx


5 comments:

  1. So proud of you for starting this blog and using your voice to encourage others! Look forward to reading more xx

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    Replies
    1. Thanks Sarah! I appreciate that. You'll be able to read more about the dietary things we discussed on our walk! xx

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  2. Hiya, my name is Dawn Bartle and am 47 (just) and am very similar to you, I live in the north of England after working in the south west of England for 20 years. I have been fighting CFS for 5-6 years constantly researching for different ways for cures. Have new doctor (last one retired) and she is very good going along with whatever I try next, and tries appropriate blood tests. I had glandular fever age of 30 and I too never seem to properly back on form. Back then I also tried ways to gain energy, but worked long hours in the week. Even studied Naturapathy Nutrition to gain full health ( course part time 2 years), but struggled with studies towards the end. This was 11 years ago. Moved up to north of England near my family for slower pace of life, see if that would help. But alas 8 years ago had breast cancer and had the ops and treatments. All went well,and still is, but frozen shoulder set in, followed depression, then finally one day all energy just left my body, so was diagnosed with CFS. More problems now, going through the changes causing more havoc with my body, I am reacting badly to medication to help it. But am lacking some iron through losing too much blood. I could cry and scream, but uses up too much energy. I spend my time just getting through the day, introducing craft into my life, I am on my computer a lot researching, especially for my diet. I have cut sugar out (extremely hard, was really poorly in the process of eliminating) still find it hard, wanting an energy boost all the time. Read when I can, and stick to watching tv for evenings. You name it I've tried it, although money is lacking, so are things not able to do. I spend my life now focusing on getting better to get back to working instead of for me, life is very hard under current government. There is so so much I haven't written, and I don't really write to anyone about my story. I won't give up, I will find a way, I am a fighter, determind and this probably won't help me, but I don't know any other way. Anyway, with all that said, if you want any help (a partner in crime ;)), please let me know, I am always looking for a new focus/project to do from home. Take care and eat well :) x Dawn

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    1. Hi Dawn,
      WOW, you have been persevering for a long time! And through so much! So many complications when things like additional disease and hormones become part of the picture. I agree, cutting sugar is not easy. But the cravings do ease dramatically after the initial detox. I currently use honey and stevia as sweeteners too. You're on to something with the craft! There at least should not be any nasty repercussions there my friend!
      Definitely, stay in touch and keep reading. Look forward to hearing more about your journey. Much love, Scarlett

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  3. Hi Scarlett, I'm Ali and have suffered with CFS since Aug'13 when I had glandular fever. At the time I was working super-hard and training for a marathon too.

    I'm slowly, slowly figuring this thing out and making vague two-steps-forward-one-step-backwards kinda movements. You know how it is! I'm determined and quite positive.

    Anyway, looks like you're Welly-based so if you need support, or wanna catch up for herbal tea with someone who knows what you're going through - that'd be sweet. I went to a CFS/ME support group but it depressed me as some were resigned to it, and most were over ten years of having it.

    All the best,
    Ali
    aliwhitton1983@gmail.com

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